This FEBruary, SBP is focusing on Alagille Syndrome (ALGS), a rare genetic disorder that can affect the liver, heart, and other parts of the body.
SBP is hosting the first scientific conference focusing specifically on ALGS. Our annual Rare Disease Day Symposium takes place on February 24. One in 30,000 infants are born with ALGS. The severity of the disorder ranges from mild to patients who need life-saving liver transplants.
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